Studying Science and Social Inequalities: Resurgences and Divergences

Steven Epstein


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Almeling, Rene. 2011. Sex Cells: The Medical Market for Eggs and Sperm. Berkeley: University of California Press.

Bell, Susan E. 2009. Des Daughters: Embodied Knowledge and the Transformation of Women's Health Politics. Philadelphia: Temple University Press.

Benjamin, Ruha. 2013. People's Science: Bodies and Rights on the Stem Cell Frontier. Stanford, CA: Stanford University Press.

Bliss, Catherine. 2012. Race Decoded: The Genomic Fight for Social Justice. Stanford, CA: Stanford University Press.

Braun, Lundy. 2014. Breathing Race into the Machine : The Surprising Career of the Spirometer from Plantation to Genetics. Minneapolis: University of Minnesota Press.

Duster, Troy. 1990. Backdoor to Eugenics. New York: Routledge.

Epstein, Steven. 1995. "The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials." Science, Technology, & Human Values 20 (4): 408-437.

———. 1996. Impure Science: AIDS, Activism, and the Politics of Knowledge. Berkeley: University of California Press.

———. 1997a. "Activism, Drug Regulation, and the Politics of Therapeutic Evaluation in the AIDS Era: A Case Study of Ddc and the 'Surrogate Markers' Debate." Social Studies of Science 27 (5):691-726.

———. 1997b. "AIDS Activism and the Retreat from the Genocide Frame." Social Identities 3 (3):415-438.

———. 2007. Inclusion: The Politics of Difference in Medical Research. Chicago: University of Chicago Press.

———. 2008. "Patient Groups and Health Movements." Pp. 499-539 in The Handbook of Science and Technology Studies, edited by E. J. Hackett, O. Amsterdamska, M. Lynch and J. Wajcman. Cambridge, MA: MIT Press.

———. 2010. "The Great Undiscussable: Anal Cancer, HPV, and Gay Men’s Health." Pp. 61-90 in Three Shots at Prevention: The HPV Vaccine and the Politics of Medicine's Simple Solutions, edited by K. Wailoo, J. Livingston, S. Epstein and R. Aronowitz. Baltimore: Johns Hopkins University Press.

———. 2011. "Measuring Success: Scientific, Institutional, and Cultural Effects of Patient Advocacy." Pp. 257-277 in Patients as Policy Actors, edited by B. Hoffman, N. Tomes, R. Grob and M. Schlesinger. New Brunswick, NJ: Rutgers University Press.

Eyal, Gil, Brendan Hart, Emin Onculer, Neta Oren, and Natasha Rossi. 2010. The Autism Matrix: The Social Origins of the Autism Epidemic. Cambridge, England: Polity.

Fausto-Sterling, Anne. 1992. Myths of Gender: Biological Theories About Women and Men. 2nd ed. New York: Basic Books.

———. 2000. Sexing the Body: Gender Politics and the Construction of Sexuality. New York: Basic Books.

Fujimura, Joan H., and Ramya Rajagopalan. 2011. "Different Differences: The Use of ‘Genetic Ancestry’ Versus Race in Biomedical Human Genetic Research." Social Studies of Science 41 (1):5-30.

Hoffman, Beatrix, Nancy Tomes, Rachel Grob, and Mark Schlesinger. 2011. Patients as Policy Actors. New Brunswick, NJ: Rutgers University Press.

Irwin, Alan. 1995. Citizen Science: A Study of People, Expertise and Sustainable Development. London: Routledge.

Jasanoff, Sheila. 1990. The Fifth Branch: Science Advisers as Policymakers. Cambridge, MA: Harvard University Press.

Jordan-Young, Rebecca M. 2010. Brain Storm: The Flaws in the Science of Sex Differences. Cambridge, MA: Harvard University Press.

Kahn, Jonathan. 2012. Race in a Bottle: The Story of BiDil and Racialized Medicine in a Post-Genomic Age. New York: Columbia University Press.

Klawiter, Maren. 2008. The Biopolitics of Breast Cancer: Changing Cultures of Disease and Activism. Minneapolis: University of Minnesota Press.

Lezaun, Javier, and Linda Soneryd. 2007. "Consulting Citizens: Technologies of Elicitation and the Mobility of Publics." Public Understanding of Science 16:279-297.

Montoya, Michael J. 2011. Making the Mexican Diabetic: Race, Science, and the Genetics of Inequality. Berkley: University of California Press.

Morning, Ann. 2011. The Nature of Race: How Scientists Think and Teach About Human Difference. Berkeley: University of California Press.

Murphy, Michelle. 2006. Sick Building Syndrome and the Problem of Uncertainty: Environmental Politics, Technoscience, and Women Workers. Durham, NC: Duke University Press.

Nelson, Alondra. 2013. Body and Soul: The Black Panther Party and the Fight against Medical Discrimination. Minneapolis: University of Minnesota Press.

Pollock, Anne. 2012. Medicating Race: Heart Disease and Durable Preoccupations with Difference. Durham, NC: Duke University Press.

Rabeharisoa, Vololona, and Michel Callon. 2002. "The Involvement of Patients' Associations in Research." International Social Science Journal 54 (171):57-63.

Richardson, Sarah S. 2013. Sex Itself: The Search for Male and Female in the Human Genome. Chicago: University of Chicago Press.

Roberts, Dorothy E. 2011. Fatal Invention: How Science, Politics, and Big Business Re-Create Race in the Twenty-First Century. New York: New Press.

Shim, Janet K. 2014. Heart-Sick: The Politics of Risk, Inequality, and Heart Disease. New York: New York University Press.

Shostak, Sara. 2013. Exposed Science: Genes, the Environment, and the Politics of Population Health. Berkeley: University of California Press.

Waidzunas, Tom J. 2013. "Intellectual Opportunity Structures and Science-Targeted Activism: Influence of the Ex-Gay Movement on the Science of Sexual Orientation." Mobilization 18 (1):1-18.

Wynne, Brian. 1992. "Misunderstood Misunderstandings: Social Identities and Public Uptake of Science." Public Understanding of Science 1:281-304.